Obtenida la media sanción en la Cámara de Diputados, hoy se debate en el Plenario de Comisiones del Senado de la Nación
El senador nacional Edgardo Kueider comunicó a través de sus redes sociales su acompañamiento al proyecto de Ley de Fibrosis Quística de páncreas que se debatirá hoy en el Senado, donde se busca declarar de interés nacional la lucha contra la enfermedad. «El proyecto propone incluir en el programa médico obligatorio (PMO) de obras sociales y prepagas el tratamiento de los pacientes que padecen de fibrosis quística» explicó el representante entrerriano.
La Fibrosis Quística es una enfermedad genética multiorgánica que afecta al sistema respiratorio y digestivo. Los pacientes que la padecen presentan frecuentemente infección pulmonar crónica y dificultades nutricionales debido a su insuficiencia pancreática que conlleva a que las personas deban recibir un tratamiento continuo y de por vida.
La afectación del páncreas comienza desde la vida fetal entre las 28 y 32 semanas de gestación y, a su vez, numerosos estudios confirman que la función respiratoria se ve comprometida desde el nacimiento; lo que revela la importancia de la intervención terapéutica precoz a fin de evitar el deterioro de la función respiratoria, que, invariablemente aparece con el tiempo y es la responsable de la causa más frecuente de muerte en pacientes con fibrosis quística.
Según estadísticas de la Organización Mundial de la Salud (OMS), esta patología afecta a 1 de cada 2.500 nacidos vivos. En Argentina, alrededor de 400 niños nacen por año con esta enfermedad, pero no existen estadísticas oficiales en la materia, estimándose que esta enfermedad afecta a más de 8.000 personas en nuestro país, pudiendo ser muchas más las que la padecen dado que no todos los casos son detectados.
174 respuestas
hey there and thank you for your info – I have definitely picked up something new from
right here. I did however expertise a few technical
issues using this site, since I experienced to reload the website many times previous
to I could get it to load correctly. I had been wondering if your
web host is OK? Not that I am complaining, but slow loading instances times will often affect your placement in google and can damage your high-quality score if ads and marketing with Adwords.
Well I’m adding this RSS to my email and can look out for a lot more of your
respective fascinating content. Make sure you update this again soon..
Escape rooms
I like this weblog it’s a master piece! Glad I detected this
on google.!
There’s definately a great deal to find out about this topic. I like all of the points you made.
Great info. Lucky me I recently found your website by accident (stumbleupon). I have book-marked it for later!
After looking over a number of the blog articles on your blog, I truly appreciate your way of blogging. I bookmarked it to my bookmark webpage list and will be checking back soon. Take a look at my website as well and let me know how you feel.
This blog was… how do you say it? Relevant!! Finally I’ve found something which helped me. Appreciate it!
That is a really good tip particularly to those new to the blogosphere. Brief but very accurate information… Many thanks for sharing this one. A must read post.
Hello! I just want to offer you a big thumbs up for your excellent information you have right here on this post. I will be returning to your blog for more soon.
I blog often and I seriously thank you for your information. This article has really peaked my interest. I will bookmark your site and keep checking for new details about once a week. I subscribed to your RSS feed as well.
Greetings! Very useful advice in this particular post! It is the little changes which will make the most significant changes. Thanks for sharing!
I love reading a post that can make men and women think. Also, thanks for permitting me to comment.
It’s nearly impossible to find knowledgeable people on this subject, however, you sound like you know what you’re talking about! Thanks
I like looking through a post that will make people think. Also, thank you for allowing for me to comment.
A motivating discussion is worth comment. I do think that you need to write more on this subject matter, it might not be a taboo matter but usually people do not discuss such subjects. To the next! Kind regards!
I used to be able to find good info from your blog posts.
Greetings! Very helpful advice in this particular post! It is the little changes that make the greatest changes. Many thanks for sharing!
I was very happy to discover this web site. I wanted to thank you for ones time for this wonderful read!! I definitely appreciated every bit of it and i also have you book-marked to check out new information on your website.
Pretty! This has been an incredibly wonderful article. Many thanks for providing this info.
It’s hard to find educated people in this particular topic, but you seem like you know what you’re talking about! Thanks
Greetings! Very helpful advice in this particular article! It is the little changes that will make the most significant changes. Many thanks for sharing!
After checking out a handful of the articles on your site, I really appreciate your way of writing a blog. I bookmarked it to my bookmark webpage list and will be checking back in the near future. Take a look at my web site as well and tell me your opinion.
Pretty! This has been a really wonderful post. Thanks for providing these details.
Excellent blog you have here.. It’s hard to find quality writing like yours nowadays. I really appreciate individuals like you! Take care!!
No Deposit Home and Land Packages emerged in the market to give a solution to this need.
I truly love your website.. Pleasant colors & theme. Did you develop this web site yourself? Please reply back as I’m planning to create my very own site and want to know where you got this from or just what the theme is named. Appreciate it.
Hi, I do think this is a great blog. I stumbledupon it 😉 I am going to come back yet again since i have book marked it. Money and freedom is the greatest way to change, may you be rich and continue to help other people.
This is a really good tip especially to those fresh to the blogosphere. Brief but very accurate information… Thanks for sharing this one. A must read post.
When I initially left a comment I seem to have clicked the -Notify me when new comments are added- checkbox and from now on every time a comment is added I get four emails with the same comment. There has to be an easy method you can remove me from that service? Thank you.
Hi there! This blog post could not be written much better! Looking through this article reminds me of my previous roommate! He always kept preaching about this. I am going to send this article to him. Pretty sure he will have a good read. Thanks for sharing!
Everything is very open with a clear description of the issues. It was really informative. Your website is very useful. Thank you for sharing!
An intriguing discussion is worth comment. I do believe that you should write more on this subject matter, it may not be a taboo matter but typically people do not talk about such subjects. To the next! Many thanks!
Hey there! I just want to offer you a huge thumbs up for the excellent information you’ve got here on this post. I am coming back to your web site for more soon.
You are so cool! I don’t think I’ve truly read a single thing like that before. So nice to discover another person with a few original thoughts on this subject. Really.. many thanks for starting this up. This web site is one thing that’s needed on the web, someone with a bit of originality.
Your style is unique compared to other folks I’ve read stuff from. Thanks for posting when you have the opportunity, Guess I will just book mark this page.
I used to be able to find good info from your articles.
The future of any business depends on these changes.
This is the perfect web site for anybody who would like to understand this topic. You understand a whole lot its almost hard to argue with you (not that I actually will need to…HaHa). You certainly put a new spin on a topic which has been discussed for decades. Wonderful stuff, just excellent.
This is a topic that is close to my heart… Many thanks! Where can I find the contact details for questions?
When I originally commented I appear to have clicked the -Notify me when new comments are added- checkbox and now each time a comment is added I receive four emails with the same comment. Perhaps there is an easy method you are able to remove me from that service? Kudos.
An intriguing discussion is worth comment. I do believe that you should write more about this subject matter, it may not be a taboo subject but typically people don’t discuss such issues. To the next! Cheers!
There is definately a lot to find out about this subject. I really like all of the points you made.
I would like to thank you for the efforts you’ve put in writing this website. I really hope to view the same high-grade content by you in the future as well. In fact, your creative writing abilities has inspired me to get my own blog now 😉
Very good article! We are linking to this particularly great article on our website. Keep up the good writing.
It’s hard to come by experienced people in this particular subject, however, you seem like you know what you’re talking about! Thanks
This is a topic which is close to my heart… Best wishes! Exactly where can I find the contact details for questions?
Everything is very open with a clear clarification of the challenges. It was truly informative. Your website is very helpful. Thanks for sharing!
It’s nearly impossible to find experienced people for this subject, however, you seem like you know what you’re talking about! Thanks
Good post. I learn something new and challenging on sites I stumbleupon on a daily basis. It will always be useful to read through content from other writers and practice a little something from their web sites.
Everything is very open with a precise clarification of the issues. It was truly informative. Your site is very helpful. Thanks for sharing.
Hello! I just would like to give you a huge thumbs up for your great info you have here on this post. I’ll be coming back to your blog for more soon.
Good write-up. I absolutely love this site. Thanks!
An outstanding share! I’ve just forwarded this onto a friend who was doing a little research on this. And he actually ordered me dinner due to the fact that I found it for him… lol. So let me reword this…. Thank YOU for the meal!! But yeah, thanks for spending the time to discuss this topic here on your site.
Excellent article. I definitely appreciate this website. Keep it up!
After I initially commented I seem to have clicked the -Notify me when new comments are added- checkbox and now whenever a comment is added I recieve 4 emails with the same comment. Perhaps there is an easy method you can remove me from that service? Thanks a lot.
Your style is really unique compared to other people I’ve read stuff from. Many thanks for posting when you’ve got the opportunity, Guess I’ll just bookmark this page.
Excellent post! We are linking to this particularly great content on our website. Keep up the great writing.
Good information. Lucky me I found your site by chance (stumbleupon). I have book marked it for later!
Good post! We are linking to this great article on our website. Keep up the good writing.
When an asset is liquid, it is less volatile since there are many potential buyers ready to put their money in something useful, Most of these assets have to be evergreen such as vehicles.
A supportive environment that encourages physical activity can have significant benefits for older adults.
Some of the none-core assets that public sector lenders hold are in the stock and commodity exchanges such as the National Stock Exchange and the Multi-Commodity Exchange, in rating agencies such as CARE and ICRA, in Stock Holding Corp of India Ltd and asset reconstruction companies.
bookmarked!!, I like your blog!
Excellent post. I will be facing a few of these issues as well..
Hello there! I simply want to give you a huge thumbs up for the excellent information you have right here on this post. I am coming back to your website for more soon.
The «book value», «mark-to-market» and «mark-to-future» conventions are three different approaches to reconciling financial capital value units of account.
It’s important to get timely medical care when symptoms of heart failure arise, but it’s equally important to work with a physician to avoid the condition altogether.
In return, REITs are required to distribute 95 of their income, which may be taxable to its investors.
You have three places to go to when deciding to trade in commodity futures: the National Commodity and Derivative Exchange, the National Multi Commodity Exchange of India Ltd., and the Multi Commodity Exchange of India Ltd.
At most effective, free forex robot investors are poorly developed and badly examined.
Excellent write-up. I definitely love this website. Keep it up!
Howdy! I just would like to offer you a big thumbs up for your great information you’ve got here on this post. I am returning to your website for more soon.
Hi there! I simply wish to give you a big thumbs up for your excellent info you’ve got right here on this post. I will be coming back to your site for more soon.
Pretty! This was a really wonderful article. Thank you for providing this info.
This is a topic that’s near to my heart… Take care! Where are your contact details though?
Good post. I certainly appreciate this site. Keep writing!
bookmarked!!, I like your blog.
Your style is really unique compared to other folks I’ve read stuff from. I appreciate you for posting when you’ve got the opportunity, Guess I’ll just book mark this blog.
bookmarked!!, I really like your web site!
Nice post. I learn something new and challenging on sites I stumbleupon on a daily basis. It will always be useful to read through content from other writers and use something from their websites.
You need to take part in a contest for one of the most useful websites online. I’m going to highly recommend this website!
Very interesting info!Perfect just what I was looking for!
Travel blog
After looking at a few of the articles on your web site, I really appreciate your technique of writing a blog. I book marked it to my bookmark site list and will be checking back in the near future. Take a look at my web site too and tell me your opinion.
Right here is the perfect webpage for anybody who wishes to understand this topic. You realize a whole lot its almost hard to argue with you (not that I actually will need to…HaHa). You definitely put a fresh spin on a subject that’s been written about for decades. Wonderful stuff, just wonderful.
I need to to thank you for this great read!! I absolutely enjoyed every little bit of it. I’ve got you book marked to look at new stuff you post…
I could not refrain from commenting. Exceptionally well written!
Good site you have here.. It’s hard to find high-quality writing like yours nowadays. I truly appreciate individuals like you! Take care!!
I’m impressed, I must say. Seldom do I come across a blog that’s both equally educative and engaging, and let me tell you, you’ve hit the nail on the head. The issue is something too few folks are speaking intelligently about. I am very happy I stumbled across this in my hunt for something regarding this.
You should be a part of a contest for one of the highest quality sites online. I will recommend this website!
Legendary investor John Bogle in ‘The Clash of the Culture: Investment Vs Speculation’ said the minds of most individuals about investment and speculations are indistinguishable.
In 2011 alone, under the survey, it came to notice that there was inappropriate access to electronic personal health information of healthcare organizations.
But for high-rolling investors who want to make large amounts of money quickly — and fully understand the serious risks involved — nothing beats buying on margin.
General Motors leads the industry in E85 ethanol-capable vehicles, with more than a dozen models for 2007.
We’re guessing not. This means you will not save enough to be able to continue your present lifestyle in old age.
I was very pleased to find this website. I need to to thank you for your time for this fantastic read!! I definitely liked every bit of it and i also have you bookmarked to look at new stuff on your blog.
Hi there! This article could not be written much better! Going through this post reminds me of my previous roommate! He constantly kept preaching about this. I most certainly will forward this article to him. Pretty sure he will have a good read. Many thanks for sharing!
I needed to thank you for this excellent read!! I definitely loved every bit of it. I have got you book marked to look at new stuff you post…
Aw, this was an exceptionally nice post. Taking the time and actual effort to make a superb article… but what can I say… I procrastinate a whole lot and never manage to get anything done.
HostSailor provides some of the finest dedicated server options on the hosting market, for which you can make dedicated server Bitcoin payments.
Why doesn’t every student who needs financial aid take out a Perkins Loan?
They will charge you when you are making a crypto transaction.
Designed by chief engineer Barney Roos, it closely resembled the «planar» suspension that Roos had developed for Studebaker in the mid-Thirties, utilizing a seven-leaf transverse spring in lieu of the more conventional coils.
Some are Global Penny Stocks that can be traded at a given exchange from any other part of the world.
It’s hard to find knowledgeable people on this subject, but you seem like you know what you’re talking about! Thanks
Way cool! Some extremely valid points! I appreciate you penning this article and the rest of the site is also very good.
Hello there, I believe your blog may be having internet browser compatibility issues. Whenever I look at your site in Safari, it looks fine however when opening in IE, it’s got some overlapping issues. I simply wanted to give you a quick heads up! Besides that, great site!
Can I just say what a comfort to uncover somebody who genuinely knows what they are talking about on the internet. You certainly realize how to bring a problem to light and make it important. A lot more people have to check this out and understand this side of the story. It’s surprising you are not more popular since you most certainly have the gift.
I wanted to thank you for this good read!! I absolutely enjoyed every little bit of it. I have got you book-marked to look at new stuff you post…
I want to to thank you for this very good read!! I definitely loved every little bit of it. I have got you saved as a favorite to look at new things you post…
Private lenders can also reach a decision faster with approvals only going through one tier rather than being overlooked by many levels of management.
Tax-free mutual funds invest only in municipal bonds.
Carpets with built-in padding don’t need a separate pad, but the attached foam is usually too thin to stand up in high traffic areas.
Depending on the type of load a mutual fund exhibits, charges may be incurred at the time of purchase, time of sale, or a mix of both.
Hypervigilance: A state of heightened alertness and constantly scanning the environment for threats are hallmarks of hypervigilance.
Some businesses and houses have been abandoned because of the flood.
The bus pushed by Egg Shen in the film Massive Hassle in Little China into Chinatown, San Francisco is a White 706 which was later bought by the Skagway Avenue Automotive Firm.
You have made some decent points there. I checked on the net for additional information about the issue and found most individuals will go along with your views on this site.
Having read this I believed it was rather enlightening. I appreciate you spending some time and effort to put this informative article together. I once again find myself spending a lot of time both reading and posting comments. But so what, it was still worthwhile.
At this point, private equity research provides financial valuation and modelling, and due-diligence support to ensure good insights on your investment targets.
After earning his legal degree, Russo was a workers lawyer for the Securities and Trade Commission (SEC).
An angel will usually fund a startup in exchange for a percentage of equity in the business.
A standoff between Glencore Chief Executive Ivan Glasenberg and Xstrata’s Mick Davis – who has called on JPMorgan’s Ian Hannam and Brett Olsher, formerly of Deutsche Bank, for a string of deals – could force banks to take sides.
What are the advantages and disadvantages of forward pricing in the futures marketplace vs.
You made some decent points there. I checked on the net for additional information about the issue and found most people will go along with your views on this website.
You have made some good points there. I looked on the internet to find out more about the issue and found most people will go along with your views on this website.
Having read this I believed it was very informative. I appreciate you finding the time and effort to put this information together. I once again find myself personally spending a lot of time both reading and leaving comments. But so what, it was still worthwhile!
I couldn’t refrain from commenting. Exceptionally well written.
This is a topic that’s near to my heart… Many thanks! Where can I find the contact details for questions?
I received my Masters Diploma in Political Science on the College of Karachi in Pakistan and I am one of the founding members of the Pakistan Human Rights Commission.
By October 1779, the negotiations had ground to a halt.
10.8 billion in U.S.
Somerville, Glenn (June 1, 2009).
FTSE 100. This turns into the benchmark to measure success or failure against.
Darkish pools are alternative buying and selling methods that are non-public in nature-and thus don’t work together with public order circulation-and search as an alternative to provide undisplayed liquidity to giant blocks of securities.
Content has been gen erated with t he help of GSA Conte nt G enerator Demoversion .
When I originally left a comment I seem to have clicked on the -Notify me when new comments are added- checkbox and from now on every time a comment is added I recieve 4 emails with the exact same comment. Is there an easy method you are able to remove me from that service? Thank you.
When I originally commented I appear to have clicked on the -Notify me when new comments are added- checkbox and from now on every time a comment is added I receive 4 emails with the exact same comment. Perhaps there is a way you can remove me from that service? Appreciate it.
Hello, I do think your website may be having internet browser compatibility problems. Whenever I take a look at your website in Safari, it looks fine however when opening in Internet Explorer, it’s got some overlapping issues. I just wanted to provide you with a quick heads up! Other than that, wonderful blog.
Aw, this was a very nice post. Finding the time and actual effort to produce a top notch article… but what can I say… I hesitate a lot and never seem to get anything done.
Can I simply say what a relief to find an individual who really understands what they’re discussing on the net. You definitely understand how to bring an issue to light and make it important. More and more people should read this and understand this side of your story. I was surprised that you are not more popular since you definitely have the gift.
Way cool! Some extremely valid points! I appreciate you writing this article and the rest of the site is also really good.
Having read this I believed it was very informative. I appreciate you taking the time and effort to put this short article together. I once again find myself spending a lot of time both reading and leaving comments. But so what, it was still worth it.
Having read this I believed it was really informative. I appreciate you finding the time and energy to put this short article together. I once again find myself spending a significant amount of time both reading and commenting. But so what, it was still worth it!
I absolutely love your blog.. Very nice colors & theme. Did you build this amazing site yourself? Please reply back as I’m hoping to create my own site and would love to find out where you got this from or exactly what the theme is called. Thank you.
Your style is very unique compared to other people I’ve read stuff from. Thanks for posting when you have the opportunity, Guess I’ll just book mark this page.
I couldn’t resist commenting. Exceptionally well written!
I was more than happy to discover this great site. I want to to thank you for your time just for this fantastic read!! I definitely appreciated every part of it and I have you book-marked to see new things in your site.
Hi, I do believe this is a great website. I stumbledupon it 😉 I am going to return once again since I book marked it. Money and freedom is the greatest way to change, may you be rich and continue to guide others.
Also, watch out for contractors who perform shoddy or unsafe work and demonstrate a lack of competence.
Commercial Eye Tracking Research: Outsource market research companies examine advertisements, package designs, websites etc.
Their professionals are evaluating your investment purpose and pocket after which provide the very best investment option that provides you most funding return.
Property management software continues to develop in reputation and importance.
Office property sales volume performance and pricing will largely depend on the individual market.
Investment control or investment controlling is a monitoring function within the asset management, portfolio management or investment management.
Unfortunately for the company, those millions were model cars, patterned after the Graham Blue Streak and produced by Tootsietoy.
This is a topic which is close to my heart… Cheers! Exactly where are your contact details though?
DVD remastering runs into the identical problems.
Throughout his State of the Nation handle on July 27, 1992, he requested that the Congress enact a legislation that may create an Energy Department that will plan and handle the Philippines’ power calls for.
Given better integration among nations, a systemic disaster in a single can easily infect others.
Another services like Nifty, in which they provide 1-2 intraday nifty/bank nifty futures with accuracy of more than 95 and option in which they provide more than 15 intraday/delivery calls in nifty and/or stock options in a month with accuracy of more than 95.Capitalstars also provide some special services like Stock Combo which caters to the need of those traders who trade in stock Cash as well Stock Future in which we provide 3-4 intraday call.
U.S. sanctions against Iraq following the war prevented Coastal from purchasing Iraqi oil, but Wyatt maintained shut relations with Iraq in hopes of gaining entry to the oil at some time in the future.
You could plant just one or two rose bushes or fruit trees in your yard, but you’ll most likely want dozens of bedding plants and tons of soil and mulch.
You ought to take part in a contest for one of the most useful websites online. I am going to recommend this web site!
You are so cool! I don’t think I’ve read anything like this before. So good to discover another person with some genuine thoughts on this subject matter. Seriously.. many thanks for starting this up. This web site is something that is required on the internet, someone with some originality.
This site definitely has all of the information and facts I wanted about this subject and didn’t know who to ask.
I truly love your site.. Pleasant colors & theme. Did you build this amazing site yourself? Please reply back as I’m trying to create my own blog and would like to find out where you got this from or what the theme is named. Kudos!
Saved as a favorite, I like your website.
It’s nearly impossible to find experienced people in this particular topic, however, you seem like you know what you’re talking about! Thanks
Howdy! I just would like to give you a big thumbs up for the excellent information you have right here on this post. I am returning to your site for more soon.
I blog frequently and I truly appreciate your content. This article has really peaked my interest. I will bookmark your site and keep checking for new information about once a week. I subscribed to your Feed as well.
The next time I read a blog, I hope that it does not disappoint me just as much as this one. I mean, I know it was my choice to read through, however I actually thought you would have something interesting to say. All I hear is a bunch of whining about something you could fix if you weren’t too busy seeking attention.
This blog was… how do I say it? Relevant!! Finally I’ve found something that helped me. Thank you!
I quite like reading through an article that can make people think. Also, thanks for allowing me to comment.
Spot on with this write-up, I truly believe this website needs a lot more attention. I’ll probably be back again to see more, thanks for the advice!
Howdy! This blog post couldn’t be written much better! Going through this article reminds me of my previous roommate! He constantly kept preaching about this. I’ll send this information to him. Fairly certain he’s going to have a good read. Thanks for sharing!